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pretty_city.lights

pretty_city.lights

Member
Feb 26, 2025
8
I have chronic joint pain and stomach problems. i cant eat, sleep, walk, or socialize like a normal person and all the things i enjoy doing bring me pain. ive been getting tests done for years and go to physical therapy regularly, but my doctors have found absolutely nothing. Last time i went in, they said that my joint problems are likely due to de-conditioning from depression and my stomach problems are likely complications of anorexia. im just so mad at myself. i cannot fucking believe i did this to myself. So much time and money spent to figure this out, and its my fault? I finally know the cause of my issues and there is nothing i can do about it. I have tried so hard to get better and I am just so fucking tired of living like this. They wont prescribe me painkillers because of my addictions, which of course pushes me towards illegal drugs like coke and ketamine which i already had a problem with. That and drinking/smoking is the only way i can get relief from my pain. I spend every day laying in bed doing nothing and talking to no one. I cant even play video games like i used to (which used to be my favorite hobby, i love the escapism of getting really invested in a game and being able to ignore everything else, even if its just for a little bit) as sitting up makes my joints and stomach hurt even more. My doctors started treating my symptoms but nothing has made a dent, and most of the medications theyve tried have made me feel worse. I want to be hopeful so bad, i want to believe that theres a solution or a treatment that will end my suffering, but i dont see any real options for me besides catching the bus and getting the fuck out of here for good. I feel so trapped. I'm sorry for rambling, im not a good writer but i wanted to get my thoughts out. I know theres a thread on chronic pain, if this is the wrong place to post let me know and i will take it down. Thank you for reading
 
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pretty_city.lights

pretty_city.lights

Member
Feb 26, 2025
8
Fibromyalgia
i have thought about this quite a bit in the past, it does match my symptoms. unfortunately it doesnt seem like there are any tests for this, but i have had a lot of other conditions ruled out already so maybe i will mention this to my doctor. do you have any experience with the treatments/medication for this? i will absolutely do my own research, just curious about what that might look like. thank you

(or were u saying that you have fibromyalgia? sorry, im dense haha.)
 
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AAE

AAE

Member
Mar 28, 2024
53
If you are also hypermobile and/or have elastic skin you should look up Ehlers-Danlos Syndrome. (EDS) I have the most common type which they say some can live with "just fine" but at age 40 it's hell.
 
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FuneralCry

FuneralCry

Just wanting some peace
Sep 24, 2020
40,818
I hope you find the relief from suffering you search for, I wish you the best.
 
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WhiteRabbit

WhiteRabbit

I'm late, i'm late. For a very important date.
Feb 12, 2019
1,568
I'm guessing you've already been tested for autoimmune issues?
 
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pretty_city.lights

pretty_city.lights

Member
Feb 26, 2025
8
If you are also hypermobile and/or have elastic skin you should look up Ehlers-Danlos Syndrome. (EDS) I have the most common type which they say some can live with "just fine" but at age 40 it's hell.
I am hypermobile and have elastic skin but i dont fit the criteria for eds. thank you for your comment, i hope you find peace and im sorry youre suffering šŸ«‚
I'm guessing you've already been tested for autoimmune issues?
yeah, still no dice. really does feel like my body is attacking itself though lol šŸ˜­
 
theboy

theboy

Illuminated
Jul 15, 2022
3,096
i have thought about this quite a bit in the past, it does match my symptoms. unfortunately it doesnt seem like there are any tests for this, but i have had a lot of other conditions ruled out already so maybe i will mention this to my doctor. do you have any experience with the treatments/medication for this? i will absolutely do my own research, just curious about what that might look like. thank you

(or were u saying that you have fibromyalgia? sorry, im dense haha.)
No, I don't have that disease but according to your account it is "my diagnosis".

Yes, I have a lot of experience (I don't know if it's good or bad to say that) but I can talk about it extensively since I have a vast medical history.
 
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pretty_city.lights

pretty_city.lights

Member
Feb 26, 2025
8
No, I don't have that disease but according to your account it is "my diagnosis".

Yes, I have a lot of experience (I don't know if it's good or bad to say that) but I can talk about it extensively since I have a vast medical history.
thank you, i will look into this. I'll update the thread if i get any answers :)
 

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