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Susan Caswell

Specialist
Feb 25, 2019
316
Please can anyone help me out of this torture deafening tinnitus its a living hell i am so sorry i just wasnt like this but i cant take it day after day jet plane roaring hammering so damn ill now keep thinking surely it will stop this cant be my fate but my health im terrified now and i was so very well happy healthy how can this even happen its beyond cruel anyone out there can help cant understand it not noise so loud you just cant stand it dont even know why i was so well healthy lovely life had so much to still do i cant function like this but didnt think id get so ill mess with meds that dont even help all have made it louder and louder i cant take it any longer ive tried and tried 3 years like this taken terrible toll i want my life but i cant tolerate this its suffering no one should ever have been good all my life happy soul well nothing i couldnt do please someone help me out of this torture x
 
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MewtwoIsAlive

MewtwoIsAlive

Suffering
Jul 11, 2020
214
You have a lot of info how to do it...
Hugs tho
 
Cherrypea

Cherrypea

I remember when all this will be again
May 3, 2020
414
Sending you love Susan, I'm sorry it's all I can do xxx
 
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Susan Caswell

Specialist
Feb 25, 2019
316
You have a lot of info how to do it...
Hugs tho
I honestly dot know how to all thats stuck in my head is jump and im terrified i dont die would be crippled and still deafening tinnitus how do people manage to get their peace i never knew it was so hard but then never needed to ever life was good just not come id be living happy well loved my life x
 
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Ghost2211

Archangel
Jan 20, 2020
6,017
This is one for audiology and neurology. Nobody here can help with that even with medical knowledge . We can't know the neurological or anatomical causes, so we can't know what will help.

My heart goes out to you. I imagine this is awful for you. My suggestion is don't be passive about it with doctors. Keep calling, keep going in, and keep making it very clear it's unbearable.
 
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Susan Caswell

Specialist
Feb 25, 2019
316
This is one for audiology and neurology. Nobody here can help with that even with medical knowledge . We can't know the neurological or anatomical causes, so we can't know what will help.

My heart goes out to you. I imagine this is awful for you. My suggestion is don't be passive about it with doctors. Keep calling, keep going in, and keep making it very clear it's unbearable.
I do but they say nothing they can do no cure x
 
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Life_and_Death

Life_and_Death

Do what's best for you 🕯️ Sometimes I'm stressed
Jul 1, 2020
6,828
I'd have to look into it again but I think there's something sort of like a hearing aid that is suppose to cut down on the noise.
 
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Ghost2211

Archangel
Jan 20, 2020
6,017
I do but they say nothing they can do no cure x
Have you gotten second or even third opinions? Not all doctors are good, and even if they can't fix the cause they should be offering reducing or numbing solutions. No good doctor would tell you just live with it.
 
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Chupacabra 44

Chupacabra 44

If boredom were a CTB method, I would be long gone
Sep 13, 2020
710
I've had tinnitus for 20 years and I've stopped telling my doctors about it, because every time I bring it up they say there's nothing they can do.

Knock on wood, my tinnitus is nothing like Susan's, but lately it's been worse than normal and it makes me want to scream.

Playing classical music 24/7 in my apartment helps to soothe me to some extent and then at night for sleep I play a white noise machine set to a heavy rainstorm. This helps me, but I totally empathize with Susan and if I had my tinnitus as bad as hers I don't know how I would cope.

The weird thing is I look for cause and effect for my plethora of health problems, and I can see associations with about every single issue that I have with the outlayer being tinnitus. My perception is there's a slight correlation for me with sleep deprivation and stress other than that I just can't figure out anything with the tinnitus.

It's an extremely frustrating condition and my heart goes out to Susan!
 
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TimeToBiteTheDust

Visionary
Nov 7, 2019
2,322
I'm so sorry. Tinnitus must be a torture. I read that other users here have this condition and leads them to suicidal thoughts. Health issues suck when we can't do anything to improve.
 
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Meditation guide

Meditation guide

Always was, is, and always shall be.
Jun 22, 2020
6,089
There is a type of hearing aid that produces a sound that is supposed to drown it out. Not sure how well that works.
 
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FallingFree

Member
Aug 11, 2020
17
Please can anyone help me out of this torture deafening tinnitus its a living hell i am so sorry i just wasnt like this but i cant take it day after day jet plane roaring hammering so damn ill now keep thinking surely it will stop this cant be my fate but my health im terrified now and i was so very well happy healthy how can this even happen its beyond cruel anyone out there can help cant understand it not noise so loud you just cant stand it dont even know why i was so well healthy lovely life had so much to still do i cant function like this but didnt think id get so ill mess with meds that dont even help all have made it louder and louder i cant take it any longer ive tried and tried 3 years like this taken terrible toll i want my life but i cant tolerate this its suffering no one should ever have been good all my life happy soul well nothing i couldnt do please someone help me out of this torture x
Try white noise. You can get a white noise machine I recommend the lectofan as it has tons of customizable sounds from brown to white noise and everything in between plus it gets very loud to help mask tinnitus and train your brain to block it out. You can also get white noise apps on your phone/computer and use a Bluetooth speaker/your phones/computer speakers which would also help alot. You should also look into tinnitus lazer therapy which has helped many others with tinnitus.
 
It'sMyLife

It'sMyLife

Little bundles of futile hope we are
Apr 18, 2020
114
I just looked on a website of a doctor I have been reading for 20 years. He's usually ahead of the curve on a lot of things. His name is Joseph Mercola. I just did a search on his website and a lot of things come up . He mentions everything from magnesium supplementation to electromagnetic hypersensitivity. I hope this helps you Susan
 
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Susan Caswell

Specialist
Feb 25, 2019
316
I just looked on a website of a doctor I have been reading for 20 years. He's usually ahead of the curve on a lot of things. His name is Joseph Mercola. I just did a search on his website and a lot of things come up . He mentions everything from magnesium supplementation to electromagnetic hypersensitivity. I hope this helps you Susan
Thank yu what country is he in please
 
yetme

yetme

Arcanist
Oct 20, 2019
486
Unfortunately nobody in the world can help you. All medical care is a big lie. As soon as you get sick you are pretty much done
 
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Susan Caswell

Specialist
Feb 25, 2019
316
This is cruel dementing torture i could have stood anything but this i have to find a way i cant live with roaring hammering both ears
 
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yetme

yetme

Arcanist
Oct 20, 2019
486
This is cruel dementing torture i could have stood anything but this i have to find a way i cant live with roaring hammering both ears

The only thing that keeps me from madness is pregabalin. It doesn't help with the symptomes, it just knocks you out. So there's that.
I personally believe that there's a pathogen behind every condition, so antibiotics could be an option.
Fuck doctors. Don't trust them and don't believe them. Do your own research.
Read phoenix rising forums. There are tons of info on the subjects
 
F

FallingFree

Member
Aug 11, 2020
17
You should also look into tinnitus laser therapy.
 
G

GoneGoneGone

Enlightened
Apr 1, 2020
1,141
Susan, there are some of earplugs from Flare Audio, called Calmer, which allegedly have had great results with tinnitus.
 
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Susan Caswell

Specialist
Feb 25, 2019
316
Susan, there are some of earplugs from Flare Audio, called Calmer, which allegedly have had great results with tinnitus.
Thank you i have them though and they do nothing just trap the noise in and its even louder so had enough of it its not even tinnitus most people seem to get its not deafening roaring hammering i cant hear anything at all but this its driving me out of my mind x
 
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It'sMyLife

It'sMyLife

Little bundles of futile hope we are
Apr 18, 2020
114
Hi Susan , did you ever look over the doctor's website I mentioned? I realize some people don't like doctors and I understand that , as well as agree with it . Doctors are great for emergencies and not so great at curing . I mentioned him because he always suggests trying to find the cause of a problem and resolve that if possible versus just taking a drug . The drug companies have seen to it that prescriptions are the first thing doctors do now . It seems they don't even care what might have caused the problem any longer. One of the things he talks about , and has for many years, is all of the electromagnetic radiation (EMF) we're constantly enfulfed in. He has an article going in to how this can cause your problem in some people. I know it sounds crazy but here's a link to look over . I have no idea if this is your problem and this is only one approach of course . I'm just curious but when did this start ? If you already posted it I 'm sorry if I missed it. There's actually a town in Arizona outside of Snowflake where people have moved to in order to get away from all the radiation modern tech has brought . If you search online for EMF and tinnitus there is plenty of info on it. Most doctors are unaware of this too .

 
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S

Susan Caswell

Specialist
Feb 25, 2019
316
What do you mean by this? I thought you had tinnitus
I do have Tinnitus but i cant find anyone on the planet with it ear splitting roaring most people live with it ok its destroyed me severity plus amplifying but the anxiety and panic plus huge mess with meds
What do you mean by this? I thought you had tinnitus

What do you mean by this? I thought you had tinnitus
I said its not tinnitus like anyone else seems to get and cope with its tinnitus but dont know how its jet plane roaring its horrific but then amplifying so bad i cant even stand my own voice plus anxiety and meds its destroyed me had much living to do but i cant stay like this just wish it would stop id be ok
Hi Susan , did you ever look over the doctor's website I mentioned? I realize some people don't like doctors and I understand that , as well as agree with it . Doctors are great for emergencies and not so great at curing . I mentioned him because he always suggests trying to find the cause of a problem and resolve that if possible versus just taking a drug . The drug companies have seen to it that prescriptions are the first thing doctors do now . It seems they don't even care what might have caused the problem any longer. One of the things he talks about , and has for many years, is all of the electromagnetic radiation (EMF) we're constantly enfulfed in. He has an article going in to how this can cause your problem in some people. I know it sounds crazy but here's a link to look over . I have no idea if this is your problem and this is only one approach of course . I'm just curious but when did this start ? If you already posted it I 'm sorry if I missed it. There's actually a town in Arizona outside of Snowflake where people have moved to in order to get away from all the radiation modern tech has brought . If you search online for EMF and tinnitus there is plenty of info on it. Most doctors are unaware of this too .

Its started from nowhere 25 July 2017 but wasnt like this i coped but louder its got plus the amplifying then such anxiety and mess with meds its totally destroyed me had so much living to do but i cant take this or stay like the the panic is horrific but the noise more than i person can live with i just dont know cause and ive tried everything to get to the bottom of this thank you for trying to help me
 
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GoneGoneGone

Enlightened
Apr 1, 2020
1,141
I said its not tinnitus like anyone else seems to get and cope with its tinnitus but dont know how its jet plane roaring its horrific
Sorry if it's been mentioned before, have you had a ear check up? Might it be an insect, spider?
They can do this type of broad lavage to get any potential insects out.
Have you been on any type of psych meds before? Stopping them abruptly can give tinnitus
 
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Susan Caswell

Specialist
Feb 25, 2019
316
Sorry if it's been mentioned before, have you had a ear check up? Might it be an insect, spider?
They can do this type of broad lavage to get any potential insects out.
Have you been on any type of psych meds before? Stopping them abruptly can give tinnitus
Oh if only was an insect that would be great get it out damn noise stop never been on meds until this all have made it this extreme and caused the hyperacusis anxiety now crippling anxiety cant eat or sleep have to find way to peace i cant live with noise like this never stops its taking my sanity i cant find a sole with tinnitus deafening jet plane roaring hammering and drilling both ears i dont even know what set it off when it came id never been fitter healthier or happier never thought this would be my fate had so much happy living to do its beyond torture if only would stop its never gone down 3 years but now horrific its like being tortured alive ive survived cancer want to die for tinnitus been good all my life worked hard loved life was really healthy fit calm happy with wonderful life
 
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Braindead Atheist

Braindead Atheist

Specialist
Oct 7, 2020
387
Please can anyone help me out of this torture deafening tinnitus its a living hell i am so sorry i just wasnt like this but i cant take it day after day jet plane roaring hammering so damn ill now keep thinking surely it will stop this cant be my fate but my health im terrified now and i was so very well happy healthy how can this even happen its beyond cruel anyone out there can help cant understand it not noise so loud you just cant stand it dont even know why i was so well healthy lovely life had so much to still do i cant function like this but didnt think id get so ill mess with meds that dont even help all have made it louder and louder i cant take it any longer ive tried and tried 3 years like this taken terrible toll i want my life but i cant tolerate this its suffering no one should ever have been good all my life happy soul well nothing i couldnt do please someone help me out of this torture x
Rob a euthanasia clinic. Idk....
 
K

Kruger

Arcanist
Dec 26, 2019
482
Please can anyone help me out of this torture deafening tinnitus its a living hell i am so sorry i just wasnt like this but i cant take it day after day jet plane roaring hammering so damn ill now keep thinking surely it will stop this cant be my fate but my health im terrified now and i was so very well happy healthy how can this even happen its beyond cruel anyone out there can help cant understand it not noise so loud you just cant stand it dont even know why i was so well healthy lovely life had so much to still do i cant function like this but didnt think id get so ill mess with meds that dont even help all have made it louder and louder i cant take it any longer ive tried and tried 3 years like this taken terrible toll i want my life but i cant tolerate this its suffering no one should ever have been good all my life happy soul well nothing i couldnt do please someone help me out of this torture x
I know what it;s like. Thank god mine is not all the time but i once had it continually for 24 hours and it's sheer hell. I highly recommend buying a white noise machine. I got mine on amazon for about 30 punds and it's the best 30 I ever spent. I got the home cube. While you wait for it to come you can also listen to white noise on a laptop or your phone. Go to youtube and type in white noise, there are audio recordings there of up to 6 hours of white noise.
 

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