eden101

eden101

Member
Aug 12, 2024
81
It feels strange, I had a flare up. Felt really suicidal. Still choose to go on with life. I ordered myself some headphones to wear over my neck and play calming sounds, still waiting for them. Tired of checking. It is strange to want to persevere, feels like I ought to kill myself if I have tin
 
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pulleditnearlyoff

Student
Apr 26, 2024
123
I do, because I have hearing loss due to Meniere's disease. I have it contantly and every day. But it's not one of the reasons to kms.
 
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null_blank

null_blank

just passing through
Aug 14, 2024
111
I have tinnitus too, due to too many years in too many loud dance clubs.

(Ofc I never expected to be around long enough for it to become a problem.)

Now I can only manage it and tell others to use protection like I'm a 1980s psa or something.

I'm sorry to know yours is so bad :c

It does make me wonder how mine will get.
 
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VeryShy

VeryShy

Disabled due to severe autism, and schizophrenia
Jun 21, 2024
601
I suffer from chronic tinnitus (24/7) as a psychosomatic issue for about 2 decades now.
 
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eden101

eden101

Member
Aug 12, 2024
81
oh, didnt expect so many replies, maybe we can make a thread (?) and just chat about life on here. i mean people with T/hearing issues
 
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AAE

AAE

Member
Mar 28, 2024
18
I have tinnitus, I've had it all my life (almost 40 years) but it seems to always get louder the more exhausted I am.

I've never truly been bothered by it except one time about 20 years ago when I had been to a concert and the tinnitus was so loud I could barely hear anything else, but it went away after sleeping, thankfully.

I don't know how loud it is for others but for me it's just a constant high pitch "whistling" but I guess the reason it's never bothered me is because I was born with it. Caused by hEDS, which I found out about in my mid 30's.
 
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UnrulyNightmare

UnrulyNightmare

Student
Jul 3, 2024
127
Yeah, developed it after getting infected with covid and it has been there for the past year and a half.
Not my reason for feeling suicidal but I do miss 'hearing the silence' at night!
 
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eden101

eden101

Member
Aug 12, 2024
81
Yeah, developed it after getting infected with covid and it has been there for the past year and a half.
Not my reason for feeling suicidal but I do miss 'hearing the silence' at night!
10 years, no idea what it sounds like anymore lol
 
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Praestat_Mori

Mori praestat, quam haec pati!
May 21, 2023
10,624
I have tinnitus since my late teen years due an "accident". I don't wanna go deeper into that for privacy reasons. I learned to live with it and most of the time I don't even "hear" recognize it. Just rn I "hear" it bc I read this thread and it reminded me of that issue. But otherwise, no issues.
 
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eden101

eden101

Member
Aug 12, 2024
81
I have tinnitus since my late teen years due an "accident". I don't wanna go deeper into that for privacy reasons. I learned to live with it and most of the time I don't even "hear" recognize it. Just rn I "hear" it bc I read this thread and it reminded me of that issue. But otherwise, no issues.
similar, had it since 15-16
 
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Ash

Ash

What dreams may come?
Oct 4, 2021
1,758
I developed pulsatile tinnitus a few years ago (cause unknown). It restricts my hearing, which can be difficult but I find the sound quite comforting at night now that I'm used it, especially when there's a lot of noise on the streets. What's harder is when I get intermittent ringing in the other ear, which I've had on and off for decades. Thankfully that's not permanent. I do take care with loud music and earphones and am grateful I was never into music and concerts in my youth.
 
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Praestat_Mori

Mori praestat, quam haec pati!
May 21, 2023
10,624
similar, had it since 15-16
How old r u now? (if I may ask that) I'm mid 40's now.

My tinnitus was never a reason to become suicidal.
 
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eden101

eden101

Member
Aug 12, 2024
81
I developed pulsatile tinnitus a few years ago (cause unknown). It restricts my hearing, which can be difficult but I find the sound quite comforting at night now that I'm used it, especially when there's a lot of noise on the streets. What's harder is when I get intermittent ringing in the other ear, which I've had on and off for decades. Thankfully that's not permanent. I do take care with loud music and earphones and am grateful I was never into music and concerts in my youth.
pulsatile is very interesting, i wonder why it happens. ringing tinnitus makes sense to me, maybe something wrong with the ear, but pulsatile is unique i think. yes you should protect your hearing, thats always a good idea!
How old r u now? (if I may ask that) I'm mid 40's now.

My tinnitus was never a reason to become suicidal.
25, so had Tin for about 10 years. i wasnt thinking much about it, but due to a recent flare up, it got back on my mind. i try to avoid loud places, didnt know that having a stuffy nose on an airplane could cause issues, now i know
 
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Ash

Ash

What dreams may come?
Oct 4, 2021
1,758
pulsatile is very interesting, i wonder why it happens. ringing tinnitus makes sense to me, maybe something wrong with the ear, but pulsatile is unique i think. yes you should protect your hearing, thats always a good idea!
There are specific causes but they've all been ruled out. As it's not causing any damage and isn't symptomatic of anything else, there's no point pursuing anything invasive and costly and probably harmful to attempt to correct it. And my party trick is being able to predict the results of heart rate tests. The real downside is that it's distracting enough that if I'm trying to count things, I can only do so in time with my heartbeat 🙄
 
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eden101

eden101

Member
Aug 12, 2024
81
There are specific causes but they've all been ruled out. As it's not causing any damage and isn't symptomatic of anything else, there's no point pursuing anything invasive and costly and probably harmful to attempt to correct it. And my party trick is being able to predict the results of heart rate tests. The real downside is that it's distracting enough that if I'm trying to count things, I can only do so in time with my heartbeat 🙄
rarely i get pulsatile on my left side and then if i hold my neck there it stops, then i let go it resumes again
 
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Praestat_Mori

Mori praestat, quam haec pati!
May 21, 2023
10,624
25, so had Tin for about 10 years. i wasnt thinking much about it, but due to a recent flare up, it got back on my mind. i try to avoid loud places, didnt know that having a stuffy nose on an airplane could cause issues, now i know
I do take care with loud music and earphones and am grateful I was never into music and concerts in my youth.
When I was in my 20's I spent almost every weekend in clubs and with loud music (that's not an advice) so far it didn't have any negative influence on my hearing ability. I still like to listen to loud music and with headphones on max volume but i think it's the high frequencies that can hurt the ears.
 
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eden101

eden101

Member
Aug 12, 2024
81
When I was in my 20's I spent almost every weekend in clubs and with loud music (that's not an advice) so far it didn't have any negative influence on my hearing ability. I still like to listen to loud music and with headphones on max volume but i think it's the high frequencies that can hurt the ears.
from what i know loud noise causes some amount of damage every time you hear it, but it doesnt always develop into tinnitus or diminished ability to hear, something like that. i also visited a bunch of concerts after getting T (i was young and didnt care at the time) and nothing happened, also used headphones on and off - nothing happened. but the noise would flare up from a teapot boiling or from vacuuming at times. so its all very mysterious, the way the ear works. its super hard to study ive heard. eyes are easier to study than ears
 
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Tommen Baratheon

Tommen Baratheon

1+1=3
Dec 26, 2023
194
When I go to sleep and lay on my bed that's when the tinnitus usually kicks in. It seems to be stress related. The more stress the worse the tinnitus gets.
 
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Praestat_Mori

Mori praestat, quam haec pati!
May 21, 2023
10,624
from what i know loud noise causes some amount of damage every time you hear it, but it doesnt always develop into tinnitus or diminished ability to hear, something like that. i also visited a bunch of concerts after getting T (i was young and didnt care at the time) and nothing happened, also used headphones on and off - nothing happened. but the noise would flare up from a teapot boiling or from vacuuming at times. so its all very mysterious, the way the ear works. its super hard to study ive heard. eyes are easier to study than ears
Yeah, that's y I said no advice. Anything what is not "natural" of our environments can have potential damage to our health. Ultimately, there's no cure for tinnitus and it ha so many reasons why we can suffer from it.
 
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Ash

Ash

What dreams may come?
Oct 4, 2021
1,758
When I go to sleep and lay on my bed that's when the tinnitus usually kicks in. It seems to be stress related. The more stress the worse the tinnitus gets.
There's definitely a link with stress. What or why, nobody is yet to establish.
 
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CatLvr

Specialist
Aug 1, 2024
331
I seem to be the odd ball here. I do have it but it's very intermittent. I will go for weeks without a problem and then out of nowhere will develop a high pitched whine. And it will last for like what seem forever but I don't think it's ever been more than a couple months. Then it will go away. Weird.
 
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A

angelx616

New Member
Aug 12, 2024
3
It feels strange, I had a flare up. Felt really suicidal. Still choose to go on with life. I ordered myself some headphones to wear over my neck and play calming sounds, still waiting for them. Tired of checking. It is strange to want to persevere, feels like I ought to kill myself if I have tin
I have it but I think it's easy to ignore; it's only an issue when you think about the noise, just like how you suddenly see your nose in your vision once you think about it. Otherwise it's something I've learned to dismiss. It's almost ironic, as a child whenever I'd stay in my grandmother's room I'd absolutely LOATHE her box tv. There was always a static ringing while it was on. I always wanted to turn it off when I was in the room because of it. Now I'm 21, and that static ringing never leaves. It's in my life day and night and it's so loud.
 
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UnrulyNightmare

UnrulyNightmare

Student
Jul 3, 2024
127
10 years, no idea what it sounds like anymore lol
It sounds like what you're not hearing 🙈

Rain and thunder sounds help drowning it out to be able to sleep for me.
 
ColorlessTrees

ColorlessTrees

Stuck
Jan 4, 2022
261
I've had it since I was four after two severe ear infections. I also have visual snow which is a common comorbity to my knowledge. It sucks never being able to have silence again, and I get spikes when my sleep quality is poor or inflammation is high, but I've 'habituated' I guess. Also have noticed a general, if subtle, decline in my hearing that is seemingly out of my control, but it's definitely happening.

The tapping behind the ears trick (hard to explain) can make it quieter for a few minutes in my experience, but other than that, I feel your pain. I relentlessly tell people to protect their damn hearing because it is painful constantly being on the receiving end of volumes too loud, and because hearing loss and t are not fun regardless.
 
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eden101

eden101

Member
Aug 12, 2024
81
When I go to sleep and lay on my bed that's when the tinnitus usually kicks in. It seems to be stress related. The more stress the worse the tinnitus gets.
yes same for me, i think stress often times = stiff neck and sore muscles, meaning = louder T. those parts of the body have a lot to do with it imo. and by the end of the day i get all tired in my neck and head from not stretching or exercising, taking frequent breaks helps.
I've had it since I was four after two severe ear infections. I also have visual snow which is a common comorbity to my knowledge. It sucks never being able to have silence again, and I get spikes when my sleep quality is poor or inflammation is high, but I've 'habituated' I guess. Also have noticed a general, if subtle, decline in my hearing that is seemingly out of my control, but it's definitely happening.

The tapping behind the ears trick (hard to explain) can make it quieter for a few minutes in my experience, but other than that, I feel your pain. I relentlessly tell people to protect their damn hearing because it is painful constantly being on the receiving end of volumes too loud, and because hearing loss and t are not fun regardless.
yes i know which trick you are talking about. i wonder why it helps, sometimes i used it, my hearing can go out of one or the other ear very rarely and it knocks it back. sorry about your issues, i like to educate people too, i just told a taxi driver i had a conversation with, (we were talking about music) to protect his hearing at concerts. he didnt even know tinnitus existed. you should go to an audiologist for sure, check your hearing. its a simple test
 
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FlufflesAway

FlufflesAway

Member
Jul 31, 2024
40
Like another poster, I have tinnitus and visual snow. I've had them for as long as I can remember. Neither can be cured, so I haven't really looked into treatments? Most of the time it doesn't bother me (never known any different), but I do think it subconsciously bothers my mind. Maybe it's why I'm depressed? Clearly the mind is malfunctioning in some way... if there's ambient noise I can ignore it, but at night it gets super loud \o/

eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
 
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