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lanahelp

Student
Jan 19, 2022
186
I'm ready. Cannot heal from Lyme in my brain. Have N. 2 bottles. Praying ex hasn't found them.
Best way to plan so to somehow minimize trauma on those finding me? Planning when family out of town. Still getting medical treatment but nothing is working and I've become a miserable woman. That's the opposite of who I was and now it hurts to be alive as I cannot see or think or function alone anymore. Was a firmer professor and successful businesswoman. Loved life. Served. What a waste.
 
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Jrmull1993

Jrmull1993

Warlock
Jul 13, 2022
753
@lanahelp I'm sorry to hear about how your situation has digressed. Whatever route you move forward with I wish you all the best.
 
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miamartian2

Member
Jun 14, 2022
16
I recommend enjoying the last bit of what you have left, miserable or not fun is fun. Wait until the end of the week not the beginning of it. Take off work and do a couple of things you would've never done otherwise if your gonna go I say go out on a good note.
 
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P

purella

Member
Sep 15, 2021
65
Hey I don't know anything about your condition but if it's the aftereffects you're suffering from this could help as the dysfunction may result from similar mechanisms in other afflictions within the sphere of CFS, fighting neuroinflammation seems to be at the crux of treatment

Dapansutrile (novel inflammasome for CFS)

[Final verdict on the safety of Cerebrolysin? : Nootropics](https://www.reddit.com/r/Nootropics/comments/odx7hk/final_verdict_on_the_safety_of_cerebrolysin/)

Thats rough. I have both whats considered Osmotic demyelination syndrome and Onleys lesions from malpractice. Nothing from concussive injuries.
. . .
If we're talking about the magnitude of severe TBI, As far as our research shows to the best of my knowledge what happens in TBI is that excessive stress/damage induces senescence in brain tissue, which is the case for all cells in the body. Senescence is basically when cells decide to shut down and refuse to function. The build up of these cells is a major pillar that drives ageing forward as well. [Senescent cell build up](https://academic.oup.com/ppar/article-abstract/23/4/12/2937237?redirectedFrom=PDF) is a major cause of inflammation, which is a crucial aspect of your body that you want to get under control when you're dealing with damage. The easiest way of removing senescence is through a pathway called [autophagy](https://www.healthline.com/health/autophagy) which is the " body's way of cleaning out damaged cells". A class of medication called [senolytics](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7405395/) helps in this region. Supplements like [fisetin](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6197652/) & [Quercetin](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4808895/) aid in clearing senescent cells from the body as well as [fasting](https://pubmed.ncbi.nlm.nih.gov/31810345/) and [Hyperbaric oxygen therapy](https://alz-journals.onlinelibrary.wiley.com/doi/full/10.1002/alz.039217)
/Its recommended you talk to your doctor and get proper blood work before fasting because it can be dangerous without knowing what to do/
. .
Fasting and senolytics I feel like are what made the biggest difference. Every heavy fast/senolytic combo I went though I could feel the inflammation and pain going away in my head. [r/FMD](https://www.reddit.com/r/FMD/) and [Prolon](https://prolonfmd.com/) are great for if fasting is to much, so they created "Fasting Mimicking Diet"
I coupled senolytic therapy with peptide therapy which is where Cerebrolysin came in. Among the other peptides ;
[Thymosin Beta 4](https://pubmed.ncbi.nlm.nih.gov/26805386/)
[BPC157](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333585/)
[GHKcu](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6073405/)
[B7-33](https://pubmed.ncbi.nlm.nih.gov/32295457/)
[Ipamorelin](https://pubmed.ncbi.nlm.nih.gov/9849822/)
[modGRF](https://pubmed.ncbi.nlm.nih.gov/15817669/)
Because [autohpagy helps stem cells](https://www.frontiersin.org/articles/10.3389/fcell.2020.00138/full) the [thymosin beta 4 helps guide](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3392183/) what they should be doing.
. .
BPC157 and Thymosin Beta 4 both have synergistic effects that work in tandem with peptides GHKcu & [B7-33](https://pubmed.ncbi.nlm.nih.gov/32295457/) because of their ability to [reverse scar tissue] ( [https://pubmed.ncbi.nlm.nih.gov/18644225/](https://pubmed.ncbi.nlm.nih.gov/18644225/) ) & [tone down gliosis](https://pubmed.ncbi.nlm.nih.gov/27163643/) which tend to be the major barriors from allowing your brain from healing properly. Lastly,
/it is recommended you speak to your doctor before pursuing growth hormone/
Ipamorelin & modGRF potentiate the growth of system.
[10](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5664031/) . [11](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3020593/) . [12](https://pubmed.ncbi.nlm.nih.gov/10479465/) .
As far as supplements go, I used ;
[AlphaGPC](https://nootropicsdepot.com/alpha-gpc-150mg-capsules/)
[Triacetyluridine](https://nootropicsdepot.com/triacetyluridine-powder/)
[Krill oil](https://vivanaturals.com/products/krill-oil)
[Curcumin](https://nootropicsdepot.com/longvida-curcumin-capsules/)
[Lions mane](https://nootropicsdepot.com/lions-mane-mushroom-capsules-8-1-extract/)
[CordyCeps](https://nootropicsdepot.com/cordyceps-mushroom-capsules-10-1-extract/)
[Nicotinamide riboside](https://www.truniagen.com/truniagen-300mg/)
NAC
As far as lifestyle goes, exercising is important. If you can find a gym that has a [sauna](https://pubmed.ncbi.nlm.nih.gov/22917237/) it will really help your effort. *—————————————————————————————————*
Its taken me close to 3-4 years to fix this. Id say about 95% of it has gone away. Theres still traces of pain left over but I am exponentially further ahead than where I started and am still making considerable progress. I feel cognitively the same again

[I Need help choosing some peptides: I have had three head injuries and am 56 years old. I'm looking for suggestions for brain health and function as well as overall health and longevity I have issues with sleep and anxiety, thanks. : Peptides](https://www.reddit.com/r/Peptides/comments/tv8hpk/i_need_help_choosing_some_peptides_i_have_had/)
 
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FuneralCry

FuneralCry

Just wanting some peace
Sep 24, 2020
43,865
It really is such a cruel existence and I'm sorry that you have suffered so unbearably in life. I hope that in whatever happens, you find relief as none of us should ever have to endure such agony.
 
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S

Sniffer

Member
Jul 12, 2022
75
I'm ready. Cannot heal from Lyme in my brain. Have N. 2 bottles. Praying ex hasn't found them.
Best way to plan so to somehow minimize trauma on those finding me? Planning when family out of town. Still getting medical treatment but nothing is working and I've become a miserable woman. That's the opposite of who I was and now it hurts to be alive as I cannot see or think or function alone anymore. Was a firmer professor and successful businesswoman. Loved life. Served. What a waste.

I'm so similar to you. Successful in sports and professionally but a number of neurological issues have reduced me to a shadow of my former self. No treatment. I'm so sorry to hear your story as I know the frustration of knowing what you once were is not likely to happen again. Better to burn out than fade away. All my love. ❤️
 
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F

Forever Sleep

Earned it we have...
May 4, 2022
12,364
That's so sad. I'm so sorry for you. It just seems appalling to me that our bodies can turn against us so cruely. My Nan had a stroke and it was obvious she didn't recognise me in the end.

I hope you are able to enjoy some things with your family and wish you a peaceful journey.
 
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S

Sky66

Member
Dec 15, 2021
54
Same boat, only cancer instead of Lyme. I was very successful too, now I have nothing. What's your age? Are there still some treatments you can try?
 
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lanahelp

Student
Jan 19, 2022
186
I'm so similar to you. Successful in sports and professionally but a number of neurological issues have reduced me to a shadow of my former self. No treatment. I'm so sorry to hear your story as I know the frustration of knowing what you once were is not likely to happen again. Better to burn out than fade away. All my love. ❤️
I am so sorry for your health crisis and pain. I don't know how to live this way. And I'm terrified to do it and destroy so many lives. The pain is unbearable. Wishing you peace and strength.
Same boat, only cancer instead of Lyme. I was very successful too, now I have nothing. What's your age? Are there still some treatments you can try?
I'm so sorry! I am 54. I've tried nearly all. One thing left I'm willing to do. Similar to a cancer treatment. I don't want to do it and devastate don't many loved ones but I think I've reached my threshold. I have no sense of being a self and cannot see properly. So I'm in existential panic 24/7. Plus, I've lost everything I spent my adult life building from savings to home, partnership to community, looks and health.
It really is such a cruel existence and I'm sorry that you have suffered so unbearably in life. I hope that in whatever happens, you find relief as none of us should ever have to endure such agony.
Wow. Ty so much for all of this comprehensive information. I hope you heal fully. I'm pretty much out of fight for anything new.
 
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S

Sky66

Member
Dec 15, 2021
54
I am so sorry for your health crisis and pain. I don't know how to live this way. And I'm terrified to do it and destroy so many lives. The pain is unbearable. Wishing you peace and strength.

I'm so sorry! I am 54. I've tried nearly all. One thing left I'm willing to do. Similar to a cancer treatment. I don't want to do it and devastate don't many loved ones but I think I've reached my threshold. I have no sense of being a self and cannot see properly. So I'm in existential panic 24/7. Plus, I've lost everything I spent my adult life building from savings to home, partnership to community, looks and health.

Wow. Ty so much for all of this comprehensive information. I hope you heal fully. I'm pretty much out of fight for anything new.
Sorry for the late reply. What are your symptoms from the Lyme? If that treatment is your last option to try than it's worth a shot right? What do you have to lose?
 

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